16 I Caregiving & Family Pt 1: What It's Really Like To Receive Long-Term Care When You Have a Disability

In this episode we meet Kathleen Downes- a 31-year-old woman who lives with her parents and dog in New York. Kathleen has cerebral palsy, which means she needs constant care to do daily activities. Kathleen talks about the complicated relationship between care recipients and their families, the broken policies that force impossible choices, and the radical act of finding joy despite a system designed for isolation.  _ The episode transcript can be found here.  _ Connect with us:  EMAIL: [email protected].  WEBSITE INSTAGRAM TIK TOK _ Subscribe to our Substack for more refamulating! We write about how refamulating looks in our lives, share resources we’re using as we make this show and share special bonus content for paid subscribers. _ Our team  Host: Julia Winston Producer: Claire McInerny  Audio Engineer: Josh Gilbert Theme Music: Luke Top – We are a member of the Feelings and Co network.  Learn more about your ad choices. Visit megaphone.fm/adchoices